Hearing the voice of people with motor neurone disease
21 November 2018Cheshire West and Chester Council, along with its partners at the Health and Wellbeing Board have agreed to adopt the motor neurone disease (MND) Charter in support of local people living with this terminal disease and their carers.
MND is a fatal, rapidly progressing disease that affects the brain and spinal cord. It can leave people locked in a failing body, unable to move, talk and eventually breathe. It kills around a third of people within a year of diagnosis, and more than half within two years. There is no cure.
MND is still not fully understood and this contributes to some people with the disease not receiving the care and support they need. The MND Charter was launched to raise awareness of the condition in order to change this.
Cabinet Member for Communities and Wellbeing at Cheshire West and Chester Council and Chair of the Health and Wellbeing board (HWBB), Councillor Louise Gittins, adds “I am delighted that Cheshire West and Chester HWBB has agreed to adopt the MND Charter. It is vital that more people are aware of the needs of people with Motor Neurone Disease so those living with this devastating disease can maximise their quality of life and be treated with dignity and respect. We want to ensure our residents with MND and their carers have access to early diagnosis and valuable information, providing high quality support and treatment at the right time.”
Dr Jonathan Griffiths Clinical Chair NHS Vale Royal Commissioning Group and Acting as Deputy Chair of the Health and Wellbeing Board said, “Health and Wellbeing Board Partners are committed to adopting the charter and raising awareness of MND to ensure that local people living with this condition and their carers receive the information, advice, care and support that they need.”
Chris James, Director of External Affairs for the MND Association said “The importance of the MND Charter is undeniable. We want everyone to be clear that access to the right care, in the right place, at the right time, as set out in our Charter, can transform lives.”
For further information please visit www.mndassociation.org/mndcharter.
Dr Griffiths, Cllr Gittins, Joel Millet - Chair of the Cheshire Branch of the MND Association, Ian Chandler - Local Campaigns Coordinator West
Ian Chandler, Local Campaigns Coordinator West, Dr Jonathan Griffiths, Cllr Gittins, Joel Millet Chair of the Cheshire Branch of the MND Association